Medications don't always fix things. More and more brand-new-to-you diagnoses due to having the side effects. I most recently, about one month ago, stopped taking my Levothyroxine. It appears to be too late for me. [Stress, some medications]*My skin and scalp are scaly dry. I quit it - all on my own. I'm at 290 now, have been as high as 310. But what they do say is not an answer. It is so obvious that our diet plays a critical role in our well being and yet it is virtually ignored by most medical professionals. Then I stopped smoking 2014... raised Thyroid a small amount, as my TSH and T3 and T4 were off. Dont worry 3 -5 days isnt really the end of the world but you will start to get side effects. So far, being gluten free has not been awesome due to the toxin flush, but I feel positive that in another month, I will feel a lot better. The problem with them is they're incompetent. I've noticed that others here are taking a lower dosage. I'd be scared to stop it because I'd hate the original symptoms to come back. This occurs when your thyroid hormone level is extremely low. or maybe something herbal instead.I would love to hear your opinions on my story and any advice as i know a lot of u are really up to scratch with this drug please please add your responses im so confused!thanks for reading :-), I’m exactly the same! I've recently moved and have none of Levo and my body is torturing me, it's bad. How long does Levothyroxine take to show its effects? Levothyroxine restores balance and improves your symptoms, so if you are not taking thyroid meds, your symptoms may recur. They notified my doc to get authorization. I'm 5'8" tall, 65 year old male, and I have been unable to lose weight even with a massively altered diet. For one week I didn't have it refill, I have fatigue, anxiety. I'm going to see an endo in few months, soonest I could get in, and heard the one I will be seeing is great with helping with guidance for diet and helped a friend of mine. Especially when you have hypothyroidism due to thyroid cancer. Next she said it was scabies and prescribed a poison. I would look at a salad and gain weight. A sports lover who thinks health and family comes before all other things. Stopping Synthroid Side Effects. He thought he was totoally cured that's why he stopped taking medication. Now after having had a blood test I was told that my levels were off the scale and that I was heading for a coma or/and a stroke. You may feel cold even when it is not cold, be constipated all the time, and notice significant weight gain. The nurse practitioner I was treating with realized I have a resting heart rate of 130 and had my thyroid tested. Levothyroxine is more commonly known by the brand names Levothroid, Levoxyl, Unithroid, and Snythroid. I was unable to do that so she wished me luck. I researched dental fillings, stopped drinking pop, etc. I didn't take it as seriously as I should have, it spread to my face, neck, and head. I did not receive Saturday Sunday nor Monday. Narcotics can be taken with SSRIs. I was referred to Mayo Clinic. It is best to not stop any medication without talking to your doctor before stopping. I'm here anytime and I hope I can ask for your advice too, heaven knows we need each other! I absolutely feel for you! It took me that long to go from 197.5 to 137 by not eating as much. But good thing is that I live is California and am seeing the #1 Endocrinolgist in CA. Doctors prescribe levothyroxine as a replacement for a thyroid hormone that is normally produced in the gland to regulate your body's metabolism. This is characticized by low blood pressure, decreased breathing, decreased body temperature, coma, and death. I will never understand the weight gain as I never eat much and eat Gluten free, low amount of meat, when I do eat. I've never been overweight and now im about 25 lbs over. Synthroid there's another way to take with you when you need it. Can you become depressed tired agitated just plain out not feeling good. I quit Apr 5, 2017 but nervous doing so as It says you can lapse into a coma eventually but dont know how long that would be. I recently ran out of mine. So, I felt, I had no real choice. or maybe thats me being niave.Anyway over the last year 2016-2017 i started having anxiety, im 32 and have never suffered with this in my life, over xmas last year started getting a dreaded feeling like something bad was going to happen an uneasiness feeling, also restlessness cant sit down for 5 minutes too much energy panicky feelings, pamlpitations, loss of appetite, diarrea... after having a horrible anxiety attack xmas eve! Also experiencing new stomach issues. This was a first time to miss it. Check with your doctor immediately if any of the following side effects occur while taking levothyroxine: Less common. Although that can help when we are doctoring because we know enough, or it can help because we know where to dig for the help. If you are between the ages of 18 and 60, take no other medication or have no other medical conditions, side effects you are more likely to experience include: May increase heart rate, cause arrhythmias (palpitations), precipitate angina, and have other adverse effects on the heart. will be switching doctor. I'm on .175 mcg and I hate it. If you suddenly stop taking that medication your body will not be able to produce its own thyroid hormone (usually for days to weeks) and during this time period, you will most likely feel terrible. I do not feel like doing anything. These drugs are offered in tablet form and should be taken first thing in the morning. My energy level is much better and I'm feeling more upbeat. Frustrated beyond belief by all of this because I was fine! Please Log In or add your name and email to post the comment. Hi Aylish48: I recently stopped my hypothyroidism meds of 100mcg a day and have not felt bad at all. Some side effects may occur that usually do not need medical attention. If your doctor prescribes levothryoxine for you to function normally, take it as directed and do not stop without consulting your doctor first. Consult your physician before stopping the SSRI. Other signs are feeling tired, cold, dry skin, weight gain, slow heart, puffy face, and constipation. So far it has done nothing. Ive beennon this for several yrs but like taking any meds. I called, they said he approved one 90 day refill and they'd overnight them. Stopping the drug probably won't kill your dog, but it will adversely impact his health. I thought this medication was supposed to help control my metabolism. I really think you can't go of this medication as its highly dangerous as ive been told as i did it. Synthroid (levothyroxine) 125 mg, tablets are debossed with pfizer on one side and vgr25. loss of consciousness. Nothing wrong with me. I went from 180 to over 300. I find it had to believe all of this progresses out of the blue. Stay in touch and hang in there. Sorry did not mean to write so much. My first symptoms where feeling like someone was poisoning me. They did an ultrasound, then a biopsy. I just found out that my doctor cannot raise my pain medication dose because of new regulations and I can barely be active for an hour without ending up in bed suffering horrible pain for the following two days. Most doctors do not understand this disease. They can't take that from me. Gluten apparently mimics thyroid tissue and causes your autoimmune system to go into attack mode every time you eat it. Our bodies work awesome. Any time I've missed a day or two of my 25mcg dose of levothyroxine I have more energy and feel better. It is taken when the underactive thyroid does not produce enough hormone, causing symptoms of hypothyroidism. I struggle with bloating daily. I used to be fit and outgoing and now I am a blob. While most women tolerate the different generics just fine, some may have a … Drink a lot of water. You know what is sad, the only thing about any skin condition mentioned in the official pages is rashes. I went to the web to prove my grandmother wrong that I would not be seriously hurt if I was off my medication, but after reading this article I'm very concerned on what to do and what the actual risks are with not being on the medication Bc some people on here say "oh you'll be fine, I'm living proof" and others are saying "you could die in a coma" please help .:(. Does the active and inactive help with hair loss and split nails. I am a much calmer person now, much happier. I asked again my endo to switch to armour from levothyroxin, she said if I feel that strongly to find someone who will prescribe it. Now the last starting this Late Spring and Summer I have felt pretty hyper..not a good thing... my ENT ran my last test in August 2016 where my TSH was low above., he no longer is practicing either. I have had more energy and better sleep. So i think its this drug ive been on for 7 or 8 yrs. I know for a fact that many people complain of painful bumps that seem to follow a nerve (like mine on the head) and are so painful and bleed and ache and seem to take forever to disappear. PD empty stomach ... Had bleeding headaches.I have been in bed for a week now and very depressed and I know that I have to start the meds again. I have on & off struggled with weight my whole life. sudden loss of coordination. walmart has Levothyroxine for 4 dollars ? I'm 15 and due to loss of insurance and money had to stop taking my medication, I've been off of it for about a year now .. nothing necessarily feels different .. I never attributed my weight gain to this drug. Some of the common reasons why people are not taking thyroid meds include perceptions of lack of improvement in their condition or presence of side effects. I quit mine 3 weeks ago with no complications. I got told off on that visit that they would not continue seeing me if I would not be compliant when I had made it clear I had no means to pay them $80 and tests every 3 months and try to eek a basic living on 2 days a week work. Take care of yourself. Anyway, I have my faith which is what matters. Armour Thyroid is a natural desiccated thyroid extract for treating hypothyroidism. I was always thin. lightheadedness. But my hair is more important then weight control. I was given it initially because I lost my hair and nobody could tell me why. Of course for me everything has been super complicated. He stopped taking it for about 3-4 months. Oh, well, that was regrettable. Thyroid came out normal. I call last Monday to request it. It has been a struggle to loose the weight. Server responsed at: 02/10/2021 3:58 p.m. All texts are contributed by our excellent writers, 2 Experience and advice of another patient. In September I noticed changes to my urine after I took the meds. I'm also noticing less bloating and feel a bit better than when on the meds. Just wanted to ask if you are still off the meds and if yes how do you feel? Hi. Levothyroxine withdrawal may cause hypothyroidism, or underactive thyroid 2 3 4. It is used to treat thyroid hormone deficiency including the severe form known as myxedema coma. When I was first diagnosed, my drs wouldn't discuss anything with me. [Sedentary Obesity]My hair was shiny, full and manageable. I am 29. The side effects of both of these antidepressants and levothyroxine may increase when you take these drugs together. No Doctor will refill my medication and i have no thyroid at all. About a year ago I had to stop taking my med. I have not been to a doctor in a year or longer however, and I don't know what's going on .. Praise God I almost died. I made a Healthy Lifestyle Style change. Levothyroxine replaces what your thyroid no longer has. I gave it up to God and I remained off of that medication for over over six months and have felt so much better off of it. It’s poison this stuff! A lifetime of a whole world of hurt (physical and emotional) comes with thyroid disease. I'm just a regular person, who struggles with understanding, too. What happened was a benign tumor grew on my thyroid and this had to be surgically removed. I'd rather workout extra. Levoxyl tablets dissolve quickly and can swell in the throat, which can possibly cause choking. Try to take it at the same time daily and follow dosing instructions. Do you still have your thyroid? Levothyroxine is used to replace the natural thyroid hormone and can also be used prevent goiter. 2 weeks ago I mistakenly stopped taking my levothyroxine of 75 mcg daily, after 2 weeks I felt sluggish and tired, gained 10 lbs and my leg’s feel like Jello. How are you all doing now? The next NP/doctor said I had to increase up to 100 mcg over a period of time or I 'may' have major problems, plus start lisinopril 2.5 mg because it 'may' help protect my kidneys. Why would any sane person continue taking a drug that is hurting them? I also started having problems with cruciferous vegetables. Me Jeannie, thank you so much for the info I just was diagnosed with hypo and started Levo and have been trying to find out as much as I can about it. Never good to just stop any medication. Nope, didn't even bother. Have any of you had your thyroids removed? Tightness in my hands and feet like rubber bands pulling.Terrible constipation to the point I had an ultrasound and was completely full and had to drink that bottle of crap they give you before colonoscopy. I hope it helps somebody. Levothyroxine should not be used for the treatment of infertility unless it is caused by hypothyroidism. Was not hard to get off since I weaned off over 6months. I was only on a very low dosage. I'm a 15 year old girl who was diagnosed with Hashimotos hypothyroid disease when I was 11-12. RxList advises patients against stopping Synthroid suddenly even if they feel well. I started levothyroxine 75 mcg and developed the worse lesions on my shoulders and arms. Thanks all for the contributions to this topic. If your thyroid levels become too low you can get myxedema. Patients with thyroid cancer may suffer acute hypothyroidism because of levothyroxine withdrawal 2 3 4. Been feeling awful this last month, so ill I could not get up much at all. I started noticing rapid hair loss. Is there herbal remedies or all natural ? In the chair, I gained weight from 190 to 280. Sure, and probably more. So have stopped taking it. There is even a group for people who are frustrated with this. Wishing you the best. I always had more energy without it. Hypothyroidism can sometimes cause infertility in men and women. So did you stay off the medicine and are you still having good luck with that or what because I want to stop mine all together and I don't want to go to the doctors, I'm also on 88 MCG for the past 7 years.. never been thin since I started taking it always take naps ,always get heart palpitations, Please get back to me ... i want to feel good again .. i dont trust the doc, What did you end up doing? It is just the way I think. once again. Be careful my dear I care deeply. My Anion Gap was low. I have been on meds for 20 years and it was only 2 years ago that an endo told me that gluten was toxic to those with hashimotos. It is so hot in here all year round. I'm finding my sense of humor again, and I get by that way, too. In the worst case, with severe prolonged hypothyroidism, coma may occur. There are times I just want to chuck all of them in the toilet. Found out I have been hyperthyroid for months! When I took levothyroxine of any brand it sent me straight to my own personal hell. Anyway after reading the leaflet from the levothyroxine box of the side effects of too much levothyroxine, i was surprised to find that i had been having every single side effect bar hairloss!!! Call 1-800-222-1222 (Poison Help line) or get emergency medical attention. I have been off my levothyroxin for 2 days. The fact is I have had eating disorders all of my adult life (now 49). I have the same symptoms as yourself. I couldn't stay off of it, but I did switch to synthroid, stopped eating gluten and am now overeducated again due to the gluten adjustment. Diarrhea, vomiting, truly not hungry at all, awful taste acidity. Reported side effects are usually indicative of excessive dosage and will usually disappear when the dose is reduced or treatment is stopped. The cancer never hit my thyroid but went straight to 16 lymph nodes and 4 weeks after the highest dose of iodine therapy the cancer is back. These include calcium carbonate, aluminum or magnesium-containing antacids, cholestyramine, colestipol, sucralfate, iron supplements, and sodium polystyrene sulfonate. If you have hypothyroidism, you may feel tired all the time and have a puffy face, show heartbeat, and dry skin. Then lose my hair. It's a fact. I don't want to mess up this upbeat energetic me. If you have to use any of these drugs, take them 4 hours before or after you take your levothyroxine. I'm still doing well, just sometime a little anxiety creeps in or if I have any dizziness or headaches but I guess 20 years of taking this drug has got to take a while to get out of your system. I kept complaining to my GP that I felt awful taking Synthroid, that (after some time) I noticed some abnormal 'fat' distribution to my left leg and swelling. how long have u been off this? which made me feel like i was going mad and needed to be hospitilised, i basically went through a living hell that ruined my xmas with my children!! 11 yrs ago I seriously went after my weight gain. Along with its needed effects, levothyroxine may cause some unwanted effects. I've accidentally missed doses from my daily med box, and nothing bad happened. The heart issues went away and not drinking helps with just about everything. No insurance, I can't afford a doctor, so no levothyroxine . At the pharmacy. One problem my husband tells me about (He is a physician) is that most doctors only prescribe the inactive form of thyroid medicine. I intend to stop mine. Looking back over the last 10 years of being on it makes me question all my complaints. All of us with thyroid and medication issues aren't heard. fast or weak pulse. Sleeplessness, sweating. I read that the meds can cause this. I did not die from being OFF synthroid. Avoid taking medicines that can reduce the effectiveness of levothyroxine. My doctor keeps raising my dose when I complain of any of the issues. The lesions was so bad on my head that I couldn't comb or brush my hair. And lo and behold a lifetime of Levothyroxine comes along with it. I was fine for about a month and then I started having really scary heart issues. It's your body and your life! I didn't order last meds as forgot so I've been off for two days at the moment. You may experience anxiety or depression, like I did, in addition to hair loss and having dry and brittle nails.”. Any updates you can offer? Three weeks ago I threw up my meds in the morning, about 5 minutes after taking them. I continued to fight through it. Thanks. I have not seen big symptoms like listed above of major fatigue and what not. Then I sprained my ankle, damaged a ligament, and lost my 2 day a week job because I could not stand and run around on my foot for 12 hours. I have stop taking the medicine for three weeks an I feel awesome. I currently take 88mcg. I am so tired all the time, bloated, stomach issues, hair loss, achy legs, just never feel good. Do you still feel good? Sure enough, after dropping gluten for 2 months, I became overmedicated. I had a full thyroidectomy operation last December and after that I'm on a maintenance drug called levothyroxine as he doc said i dont have thyroid hormones anymore the dosage was only 50 mcg after 2 months of taking, i had a TSH function test and the result was very high 323 so they increased the dosage to 100 mcg , two weeks from now i will have another TSH function test , now my problem is this im gaining weights and im experiencing body pain... i want to stop taking my maintenance drug, is it possible? Do you? Had been on it .25 mcm 4 years am 118 lbs weight has not changed , yet emotionaly down. Show me where you got that - in my records? How is it going for you? Weight gain, looked like I was going to pop from fluid.Low grade fever all the time.Terrible night sweats.Sores on my face that looked like cigarette burns.After seeing multiple doctors and dermatologists they came to the conclusion that I had a "mixed connective tissue disorder". I put on weight, very often short of breath. My doctor has suggested a higher dosage, but when I tried that I lacked so much energy I could hardly function. In fact the weightloss plan that had stagnated for years has started working again (I control my portions and walk 10,000 everyday) from 84 I went down to 82 in five days. !Anyway i have a blood test this friday and i will then explain all this to my doctor and ask to see a specialist as obviously my doctors do not have enough knowledge of this condition, and i want to be properly informed about this drug and also what else i can take or even if i need it at all! I've been taking levothyroxine for 10 years now and now I'm starting to experience knee pain and cramps in my legs but I noticed every time I stop taking them the pain subsides and then after that I feel anxiety and depressed. - similar to what you're reporting. My brushes, combs, shower, sink and floor are full of hair now. I don’t see why they even prescribe it when it appears to do more bad than good. Sounds dramatic but I have had nothing but problems since I began taking it. The best way to check for hypothyroidism is to look at the level of thyroid stimulating hormone (TSH) in the blood. :(. Levothyroxine, for example, is a thyroid hormone prescribed for patients who are hypothyroid (underactive gland). I want to stop it. I pray to God it is not something else going on. I have been on crappy thyroid med too - long time... 20 plus years. I just had a full hysterectomy on 8/1/16.
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